Update

I was hoping the update would be different, that's why it has taken me a few days to actually write about it. Prior to my MRI on Monday, my endocrinologist did some blood work which confirmed my hepatic liver function was compromised. The medicine I take daily, somovert had the side effect of being potentially harmful to your liver. The chemoboliztion is also hard on your liver, so she thinks the two of these together put me in a position to be at risk. So I knew going in for the MRI on Monday I wouldn't be able to continue my current medication. So, I had my MRI, the tumor has not shrunk enough to do the cyberknife procedure. So plan B will be to do the radiation that is a lower dose over a longer period of time. As of right now the plan is to have yet another MRI on Thursday July 22nd. She is taking me off of the somovert. It hasn't done any long term damage to my liver, but the concern is that it could which will only cause more problems. She has found another drug that is very new. It is in Sweden, and will help lower my IGF-1 level without harming my liver. It will be injections 2 times a day everyday. I am waiting to hear about an approval for the patient assistance program. How is stands right now, my copay will be $15,000. for a 6 month supply. The hope is Pfizer bridge program will pick me up and continue coverage until after my radiation. The plan is to do radiation the middle to end of August. Since it will be be 4 days every week for 6 weeks. The thought behind waiting was to have the kids in school and hope things slow down a little bit! I don't know if you are thinking what I am thinking, but things never seem to slow down!
So, it's not the best news, but not the worst either. I am trying to remain positive and deal with one thing at a time. I can't think much beyond that because I get very overwhelmed. Joe, the kids and I are all keeping busy. Joe is very busy with work, and I am busy with work, and the kids. My new mantra is one foot in front of the other!
Thank you to all that have given so generously and those that are following my blog and have offered love, support and prayers. I am so blessed to have you all in my life!